Meet Dylan: Author, A-student and athlete!


Brad interviews Dylan from Olathe, Kansas

B: What is your name?

D: Dylan


B: How old are you and where are you from?

D: I am 13 years old and from Olathe, Kansas.



B: How long have you had Tourette Syndrome?

D: I have had TS for 9 years. I was diagnosed when I

was 4.


B: What kinds of symptoms do you have?

D: I have a tic where I blink really hard, one where wrinkle my forehead, I have a shrugging tic, a tic where I lean violently to one side, I twitch my ears, clear my throat, wiggle my toes, and make a coughing sound.


B: What is life like for you living with Tourette Syndrome?

D: It does not usually effect my everyday life because everybody that I hang out with knows about it. Sometimes I will have a lot of tics at once and just have to stop for a moment to let them “tic” and then keep doing what I was doing. Sometimes I do have to explain to someone what Tourette Syndrome is though.


B: What advice can you give other kids who are newly diagnosed with Tourette Syndrome?

D: You are not alone. Talk to your parents about it. Make a plan with your teacher based on your tics. Look on the web and get in touch with others who have TS. These things will really help.


B: What is the hardest thing about living with Tourette Syndrome?

D: The hardest thing is probably getting used to a new tic.  Sometimes I will have a new tic that drives me crazy. For example, when I wrinkle my forehead, it pulls all of the skin on my head forward with it, and so when I wear a hat the brim comes way too far down into my field of view sometimes. It is getting used to these new tics that is the most difficult.


B: What do you think other people should know about Tourette Syndrome?

D: Other people should know that it is impossible to control. If I/we could control it we would stop, but we can’t. We are the ones who have to live with it but if it bothers you just tell me/us and we will acknowledge that. It is okay to be annoyed but not okay to blame us for our tics.


B: What are your strengths and what do you like to do?

D: My strengths are my intellect and my athletic ability. In school I get straight A’s and usually straight A+’s. I do enjoy school but not the homework, however this is probably what is going to carry me through life. My athletic ability is what I enjoy the most. I play baseball, basketball, and football, but football is my favorite sport.


B: What are your goals in life?

D: My goal is to help as many people as I can with my book and when that dies out, to get a job in a field where I can find ways to help people. (find a cure for TS and Cancer 😉 )

Dylan is the author of the book Tic Talk: Living with Tourette Syndrome , A 9-year-old boy’s story in his own words.

Learn more about the book on his website: www.tictalkbook.com

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