Save the Date: Atlanta Tourette Conference June 6, 2015














http://tourettesyndromeconference.com/

Join us on June 6th, 2015 in Atlanta, GA for the 2nd Annual Brad Cohen Tourette Foundation Tourette Syndrome Conference as we continue to “Break Down the Barriers” and educate teachers, parents, adults with TS, and all those who work with people who have Tourette Syndrome.


This year we will be celebrating Tourette Syndrome Awareness Month and attending the Atlanta Braves Baseball game. This will be a great way to socialize with other families who support children with Tourette Syndrome.



Our goal this year is to create a conference that is more affordable for the entire family to attend. This year we are inviting children ages 5-17 to attend the children’s track as we focus on social skills, bullying, advocacy and a sense of community so the kids see they are not alone. We will also have a track for adults with TS so they can have plenty of time to socialize and address appropriate topics for the group.


At the one day conference, hear about the latest treatments in the TS community, hear educational strategies for the classroom, learn about TS behaviors, learn about Parential Rights and IEP’s/504 Plans, learn more about OCD, ADHD, Executive Functioning and the associated behaviors and learn more about social skills that can help your kids. Excellent Speakers: Justin Bachman, Sue Conners, Sheryl Pruitt, and more!



Save the date and plan to join us in Atlanta, GA to learn more about Tourette Syndrome! Don’t miss this amazing event! Help us spread the word!

Sign-up Now: http://tourettesyndromeconference.com


Check out last years great event::


VISIT: www.tourettesyndromeconference.com

#atlantatsconference

Meet Keith: Friend, writer, future art teacher!

Meet Keith from Detroit, Michigan


What is your name? Keith


How old are you and where are you from? I’m 19 years old and I’m from Detroit, Michigan.


How long have you had Tourette Syndrome? About 15 years


What kinds of symptoms do you have? I grunt, look up, and jerk my head.


What is life like for you living with Tourette Syndrome? It is different. But it is also very exciting.


What advice can you give other kids who are newly diagnosed with Tourette Syndrome? The best advice I can give is to never give up and never be ashamed of living with Tourette syndrome.


What is the hardest thing about living with Tourette Syndrome? Not being accepted!


What do you think other people should know about Tourette Syndrome? That TS is not just a swearing disorder.  Pretty much anything can be a tic.


What are your strengths and what do you like to do? Putting out TS awareness and being a good friend are my strengths.  I like to write jokes and just have fun in life.


What are your goals in life? I hope to be an art teacher someday.

 

Other Info:  I started the High 5 for Tourette’s Facebook page. It is my hope to help create more awareness for TS.

Check it out: http://www.facebook.com/#!/high5fortourettes

 

Foundation Films Video to Support its Efforts


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hile in Philadelphia for the Evening of Cheers with Brad Cohen board members Brad Cohen, Jimmy Wolk and Lisa Palmarini spent the morning together at Center City Film and Video to record interviews that will eventually become a promotional video touting the mission and vision of the Brad Cohen Tourette Foundation.   The board members were joined by two kids who are overcoming challenges and succeeding despite their diagnosis of TS.    Zachary Harris and Gianni Palmarini were excited to meet Brad and Jimmy while being filmed to support the foundation.


Zachary, Brad and Gianni at Center City Film and Video in Philadelphia



Director Jay Arnold from Impax Marketing Group spent hours with the group interviewing them on set and discovering why Brad, Jimmy and Lisa are so committed to the work of the foundation.

While waiting his turn behind the camera Zach wowed the Center City and Impax staff with magic tricks.  Gianni serenaded the group with his sax.  The group got to experience what it is like to be on a film set getting makeup and hair done for their moment behind the camera.  Jimmy felt right at home behind the camera showing the group how it is done!

It was an exciting experience for the novice group (less Jimmy!) who then enjoyed lunch at a Philadelphia eatery to celebrate their work on the film set.

Look for the final product to debut on this website by summers end!

Meet Aryeh: future marine biologist, swimmer and singer!

Brad interviews Aryeh from Houston

B: What is your name?

A:Aryeh

B: How old are you and where are you from?

A: I am 11 years old and I’m from Houston, Texas.

B: How long have you had Tourette Syndrome?

A: I have had tics since I was 6 years old, and have had TS since I was 9.

B: What kinds of symptoms do you have?

A: My motor tics are shaking my head, pushing my arms out to touch something, and sometimes full body spasms. My vocal tics are grunting and squeaking noises and clearing my throat.

B: What is life like for you living with Tourette Syndrome?

A: It can be really annoying and I feel like I’m weird but I’ve learned that everything I do can be just as fun even though I have TS.

B: What advice can you give other kids who are newly diagnosed with Tourette Syndrome?
A: TS doesn’t define you. You’re going to have to go through things that other kids without TS have to as well, except with TS it makes you twice as strong!

B: What is the hardest thing about living with Tourette Syndrome?
A: Having a tic and everyone asking you if you’re ok or what’s wrong with you? Even though you know, nothing is wrong.

B: What do you think other people should know about Tourette Syndrome?
A: We’re still normal kids and can fit in just like everyone else. When people hear TS, they should not think “weird”.

B: What are your strengths and what do you like to do?
A: I’m friendly and very forgiving. I have a good sense of humor. I love singing and have an amazing voice, swimming, martial arts, soccer, cooking, and being with my friends.

B: What are your goals in life?

A: I am going to be the first marine biologist to train wild orca whales in the wild.

Meet Benjamin: musician, athlete and ski racer!

B: What is your name?
B: Benjamin

B: How old are you and where are you from?
B: 14 from Toronto

B: How long have you had Tourette Syndrome? B: I was diagnosed when I was 7 …but the likelihood is that it has been a part of me since my first breath.

B: What kinds of symptoms do you have?
B: I clear my throat, blink my eyes, shake my leg, and sniffle.

B: What is life like for you living with Tourette Syndrome?
B: Life with Tourette Syndrome is like a locked door leading to paradise without a key. It is a life full of many challenges that can prevent me from acting and behaving like a normal kid…but what is normal?

B: What advice can you give other kids who are newly diagnosed with Tourette Syndrome?
B: Life will get better. There will be obstacles leading up to that day, but it will come. If you expect change, be the first to show it!

B: What is the hardest thing about living with Tourette Syndrome?
B: Acceptance.

B: What do you think other people should know about Tourette Syndrome?
B: You can’t control it and people who are not aware of this disorder, should educate themselves.

B: What are your strengths and what do you like to do?
B: Sports and music. I ski race, play soccer, tennis, volleyball and sail. I also love to play guitar, piano, trumpet, drums and sing.

B: What are your goals in life?
B: I hope to obtain a successful profession and have a great family. Above all, I want to be happy.

TS Camp Organization continues it’s valuable work

The Tourette Syndrome Camp USA, founded in 1994, is a residential camping program designed for girls and boys ages 8 – 16+ whose primary diagnosis is TS, and to a lesser degree, OCD and ADD/ADHD.



The goal of the camp is to allow children with TS an opportunity to meet other children, share similar experiences and coping mechanisms in a fun, safe and positive environment.


In May, 29 campers and 20 volunteers converged on Chicago, IL for camp.  Read about one camper’s experience here.